FREE EDUCATIONAL ACTIVITIES
Bounce Out the Stigma summer camp newly announced dates:
Session 1 August 9 - 13 Chatham ECLC School
Session 2 August 16 - 20 HoHoKus Public School
Session 3 August 23 - 27 Bloomfield Middle School
http://www.efnj.com/media/pdf/2010%20MMB%20Camp%20Brochure.pdf
Educational Dinner for Patients with Epilepsy
Medication and Side Effects
Christos Lambrakis, MD
Epileptologist, Associate Director of the Northeast Regional Epilepsy Group
Memory and Attention Difficulties in Epilepsy: Testing and Treatment Options Lorna Myers, Ph.D.
Director of Clinical Neuropsychology of the Northeast Regional Epilepsy Group
Overview of the Epilepsy Foundation of Northeastern New York Jeannine S. Garab, Executive Director Sharon Gandarilla, Medicaid Service Coordinator
Tuesday, September 14, 2010
6pm - 9pm
Hotel Sierra
100 Westgate Business Center Drive
Fishkill, NY 12545
Registration is required
845-695-6885
abezuyen@epilepsygroup.com
2nd Annual NEREG Conference on Epilepsy
Saturday, October 2, 2010
FREE EVENT!
Supported in part by an educational grant from Cyberonics, Inc.
Time:
9:00AM – 10:00AM Registration & Breakfast
10:00AM – 3:00PM Program
12:00PM - Lunch
Location:
Sheraton Crossroads
1 International Boulevard #100
Mahwah, NJ 07495
AGENDA
9:00AM – 9:45AM - Registration & Breakfast
• Program Introduction
Marcelo Lancman, MD
Director, Northeast Regional Epilepsy Group
10:00AM – 10:50AM
• “Pediatric Epilepsy”
Danielle K. McBrian, MD
NEREG Pediatric Neurologist/Epileptologist
• “Is Epilepsy Inherited? A Guide for Patients and their Families”
Evan Fertig, MD
NEREG Epileptologist
• “Women & Epilepsy”
Olga Laban-Grant, MD
Epileptologist, Associate Director NEREG
• "Depression & Stress in Epilepsy: Management Strategies”
Lorna Myers, PhD
NEREG Director of Clinical Neuropsychology
11:00AM – 11: 15AM - Morning Break
11:15AM – NOON
• “The Role of Diet in the Management of Epilepsy”
Dana Casendino, RD
NEREG Nutritionist
• “Medications for Epilepsy: Today & Tomorrow”
Jeffrey M. Politsky, MD, MSc, FRCP(C)
Co-Director, Atlantic Neurosciences Institute,
NEREG Epilepsy Program Director of Research
• “Cognitive Remediation: Strategies for Memory Problems”
Robert W. Trobliger, PhD
NEREG Neuropsychologist
• “Strategies for living safely with epilepsy: A personal and professional perspective"
Lindsey Veety, PT, DPT, ATP
The Center for Discovery Director of Assistive Technology
12:00PM – 12:50PM - Lunch With The Presenters
1:00PM – 1:50PM
• “Sleep & Epilepsy”
Georges Ghacibeh, MD, MS
NEREG Epileptologist, Director of Behavioral Health
• “Epilepsy 101”
Enrique Feoli, MD
NEREG Epileptologist
• “The Neurogenetic Basis of Autism with Epilepsy”
Joseph J. Higgins, MD, FAAN
Professor, Dept. Pediatrics, Div. Pediatric Neurology, Weill Cornell Medical College
• “Surgery & Devices for Intractable Epilepsy”
Arno H. Fried, MD, FACS
Neurosurgeon, Chairman, Dept. of Neurosurgery at Hackensack
University Medical Center, Chief of Pediatric Neurosurgery at St. Peter’s University Hospital
2:00PM – 2:15PM - Afternoon Break
2:15PM – 3:00PM
• “Lifetime Planning for People with Disabilities”
Adrienne J. Arkontaky, Esq
Littman Krooks LLP
• "It looks like a seizure, but is it?"
Stephen J. Thompson, MD
Chief, Section of Pediatric Neurology
Director, Pediatric Neuro-Oncology Program Hackensack University Medical Center
• “Experimental and Alternative Treatments for Epilepsy”
Georges Ghacibeh, MD, MS
Epileptologist, NEREG Director of Behavioral Health
Shannon E. Brophy, RN, MSN, APN-BC
• “Teens, Young Adults & “Epilepsy: Transition Planning”
Harriet Schleifer, Esq.
Littman Krooks LLP
General Directions to the Hotel:
Complimentary Covered Parking Facilities
From North
Take New York State Thruway (I-87) South to Route 17 South (exit 15). Follow for 1 mile and take the Mountainside Avenue Crossroads Boulevard Exit. Follow signs to hotel.
From West
Take I-80 East to Route 17 North and follow Route 17 North for approximately 14 miles. Exit at Mountainside Ave/Crossroads Boulevard. Or take Route 202 North to Route 17 North to Mountainside Ave/Crossroads Boulevard.
From Northeast
Take the New York State Thruway (Route 87 North/Route 287 West) to Exit 15 (Route 287 South) to Exit 66 (Route 17 South/Mahwah). Once on Route 17 South, take the exit on the right at Mountainside Avenue/Crossroads Boulevard.
From South
Take Garden State Parkway North to Exit 163 or take I-80 to Route 17 North. Follow Route 17 North approximately 14 miles. Exit at Mountainside Avenue/Crossroads Boulevard.
From Newark International Airport
Follow the signs out of the airport for the New Jersey Turnpike/ I-95. Take the turnpike to Exit 16W. Take Route 3 West to Route 17 North and continue for approximately 18 miles. Exit at Mountainside Avenue/Crossroads Boulevard.
Transportation Options:
RAILWAY
Westchester Train Station (AEP) 2.0 miles
BUS
Shortline Bus Station (AEQ) 5.0 miles
2010 Walk for a Brighter Tomorrow Benefiting the The Family Resource Network.
The (FRN) is dedicated to offering individuals and their families with continuing needs the greatest opportunities, resources and services to support a full and happy life.
Introduced in September 2004, The Family Resource Network is a comprehensive family-focused human service organization. It was created as a result of the Epilepsy Foundation of New Jersey's tremendous growth in serving a broad spectrum of disabilities. Core services provided by FRN are after-school care, employment, information and referral, in home respite, legislative advocacy, and recreation/socialization.
The Family Resource Network is comprised of four affiliate organizations including: Autism Family Services of New Jersey, Caregivers of New Jersey, the Epilepsy Foundation of New Jersey, and the Family Support Center of New Jersey.
By supporting Walk for a Brighter Tomorrow, you will enable The Family Resource Network to continue to provide and expand its menu of services and make an impact on the lives of many.
The Walk for a Brighter Tomorrow is a fun filled 5K Family Walk. Walkers will have an opportunity to take photos with celebrity mascots, engage in interactive booths and receive free admission to the Family Fun Day. Most importantly, it is an opportunity to spend time with family and friends to raise much needed funds for a worthwhile cause.
When: October 10, 2010
The Walk will take place at Roosevelt Park in Edison, New Jersey. Registration will take place from 11AM-12PM, and the Walk will begin promptly at 12PM. Walk for a Brighter Tomorrow will take place Rain or Shine!
Immediately following the event, all registered walkers will be invited to participate in the Family Fun Day free of charge. Activities will include, a light lunch, refreshments, face painting, moonbounce, sports clinics and much more!http://www.walkforabrightertomorrow.org/faf/search/searchTeamPart.asp?ievent=343824&lis=0&kntae343824=97277D6E5216481E880125282CE5FC81&team=3777507
The Northeast Regional Epilepsy Group - Epilepsy Life Links will have a booth at the Autism Speaks Walk where we will be answering questions about epilepsy and handing out printed information. One of our medical doctors and one of our epilepsy advocates will be on hand. Join us there!
Saturday, October 23, 2010 • Rockland County Community College, Suffern, NY
Registration Opens: 9:30am; Walk Starts: 11:00am
To Register or form a team:
https://www.kintera.org/faf/r/default.asp?ievent=347296&lis=1&kntae347296=8AA78D0C9D0D49D58BC5D6EDD9914656
Epilepsy Awareness Month Day at White Plains Hospital Center
Thursday, November 18, 2010 from 9AM to 4PM
Epileptologist, Dr. Olga Grant Laban and Ann Marie Bezuyen, Executive Director of Epilepsy Life Links will be at White Plains Hospital Center lobby with tables providing information about epilepsy and treatment options.
No registration required.
Address: 41 East Post Road, White Plains, NY
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PAST EVENTS
National Health Centers Month Open House at White Plains Hospital Center
Thursday August 12, 2010 from 10AM to 2PM
Epileptologist, Dr. Olga Grant Laban and Dawn Brace, epilepsy advocate will be at White Plains Hospital Center answering questions about epilepsy and seizures.
No registration required. This is part of the Wellness Through Prevention Program.
Address: 41 East Post Road, White Plains, NY.
Open to everyone including uninsured (a workshop on charity care will be offered by the organizers).
The White Plains Hospital Center-Northeast Regional Epilepsy Group will be sharing information on epilepsy during the HISPANIC HERITAGE CELEBRATION in Valhalla, NY
July 25, 2010
We will have bilingual staff at our booth providing information and education about epilepsy and modes of treatment to the Spanish-speaking public.
Where: Westchester County Parks Dept.
Ethnic food, music, dance, entertainment and arts and crafts!
Hours: Sunday Noon to 7 p.m.
Cost: Free
Location: Kensico Dam Plaza
Bronx River Parkway
Valhalla, NY 10595
Come by, meet our group and celebrate Hispanic Heritage!
For additional information:
(914) 864-PARK
The Northeast Regional Epilepsy Group is sponsoring EPILEPSY AWARENESS NIGHT!
The Renegades are rolling out the Astro Turf for NEREG
to spread an important message...
We are all “ALL STARS!”
Join us for an exciting evening of Baseball - Food - Fireworks & Much More!
When: July 3, 2010
Time: 7PM
Where: Hudson Valley Renegades
1500 Route 9d
Wappingers Falls, NY
Join us for an exciting evening of Baseball * Food * Fireworks * Fun
http://www.hvrenegades.com/
20TH ANNUAL GOLF TOURNAMENT
to Benefit the Atlantic Neuroscience Institute Adult Epilepsy Center at Overlook
Join us for a great day of golf...
...and make a difference in the lives of countless epilepsy patients.
Monday, June 14, 2010
Canoe Brook Country Club - Summit, New Jersey
http://OverlookFoundation.golfreg.com
Sponsored by: Bank of America
Sara’s 5thAnnual Walk for Epilepsy & Sara’s 5K Sprint for Epilepsy
Sara-Elizabeth (www.itsnotwhoiam.com), now seizure-free, had her first seizure when she was 16 months old. Throughout her young life, Sara experienced both tonic clonic and partial complex uncontrollable seizures. Four years ago, Sara-Elizabeth, now 15-years-old, and a New Paltz High School student, turned her focus outward and organized this annual event as a way to create awareness of the disease.
This year, Epilepsy Life Links, a branch of the Northeast Regional Epilepsy Group, will have a “Sneakers for Seizures” team.
Walk With Us!
Date: Sunday, June 6, 2010
Place: The State University of New York at New Paltz
Time: 12:00 pm—2 pm
More Information: 845-695-6885
Register: abezuyen@epilepsygroup.com
Come join us on a Stroll for Epilepsy - Dutchess to Ulster
Help raise awareness and funds for the Epilepsy Foundation of Northeastern New York!
Join Christy Molinaro, Walk Chairperson, and her family at the 1st ANNUAL STROLL FOR EPILEPSY
DUTCHESS TO ULSTER COUNTY
SUNDAY, JUNE 6, 2010
WALKWAY OVER THE HUDSON BRIDGE
Check-in is at 11am on the Poughkeepsie side of the bridge; Stroll Begins at Noon
SPECIAL THANKS! TO THE FOLLOWING TOP SPONSORS:
EVENT SPONSOR: A. COLARUSSO AND SON
LUNCH SPONSOR: NORTHEAST REGIONAL EPILEPSY GROUP
Welcome to our Stroll for Epilepsy - Dutchess to Ulster County fundraising site! Interested in helping us raise funds? From this site, you can join the Northeast Regional Epilepsy Group-Epilepsy Life Links Team and begin raising money in support of the Epilepsy Foundation of Northeastern New York!
https://atl.etapestry.com/fundraiser/EpilepsyFoundationofNorthea/StrollforEpilepsyDutchesstoUlster2010/team.do?participationRef=1384.0.33144876
Dr. Olgica Laban is the invited speaker al the Epilepsy Advocate
June 3, 2010 from 6-8PM at the Crowne Plaza Hotel, 66 Hale Avenue, White Plains, NY
To Register 1-866-865-7305 or www.epilepsyadvocate.com
Hear from an epilepsy advocate and then Dr. Laban will discuss the latest advances in epilepsy definition, diagnostic evaluation, classification of seizures, and treatment
Walk for a Brighter Tomorrow!
Did you know:
1. An estimated 1.2 million individuals with developmental disabilities live in New Jersey
2. Autism Spectrum Disorder occurs 1 in every 94 births in New Jersey
3. There are an estimated 1.06 million family caregivers in New Jersey alone
4. Epilepsy is equal in prevalence to cerebral palsy, multiple sclerosis and Parkinson's disease combined
In light of this extensive population, and the amazing services provided by The Family Resource Network Kim Politsky decided to sign up our Epilepsy Life Links-Northeast Regional Epilepsy Group Team. Help us reach our goal by contributing to the cause. Each donation makes a difference, and anything you can do to support us in this would be a terrific help.
When: Sunday, May 16, 2010: Walker Check-In 11AM-12PM, Walk Begins 12PM
Where: Seaside Park, New Jersey
To donate, you can make your contribution online at our walk website www.walkforabrightertomorrow.org. We would really appreciate it if you could tell anyone else whom might be interested in contributing or participating in the walk.
Proceeds from the walk will support the programs and services of The Family Resource Network and its four affiliates: Autism Family Services of NJ, Caregivers of NJ, the Epilepsy Foundation of NJ, and the Family Support Center of NJ. These groups provide services such as after-school care, information and referral,respite care and recreation and socialization opportunities for those with epilepsy, autism, developmental disabilities and chronic illness. For more information, visit www.walkforabrightertomorrow.org
For patients and caretakers “Epilepsy: Diagnosis, Treatments and Social Topics" in SPANISH
May 22, 2010, from 9-12 PM at Marriott Glenpointe, 100 Frank W Burr Boulevard, Teaneck, NJ.
Doctores especializados en epilepsia, educadores y una abogada de inmigración hablarrán sobre la epilepsia, su tratamiento, la escuela y temas sociales. Todo es en Español. Al final, tendrá la oportunidad de hacer preguntas a los presentadores. Desayuno incluido!
Doctors who specialize in epilepsy, academic educators and an immigration attorney will be on hand to discuss epilepsy, its treatment, school and social topics entirely in Spanish. A question and answer period will be open at the end of the session. Breakfast will be served!