Events and News about Epilepsy New York New Jersey | Northeast Regional Epilepsy Group

Events & News

All year long, the Northeast Regional Epilepsy Group promotes epilepsy education for patients, their caregivers, medical treatment staff, and the general public. Team Northeast Regional Epilepsy Group participates in several epilepsy walks and many different fundraising activities that directly benefit the national or local epilepsy foundations and advocacy societies. Check out our upcoming schedule and you may find an activity that interests you.

Epilepsy Book Club

Epilepsy Book Club

March 14, 2025

The Epilepsy Book club will be reading "She danced with lightening" by Marc Palmieri this time around.

As part of our Wellness Program, NEREG and MAESC hosts an on-line epilepsy and seizure-themed Book Club every 4 months! Everyone in the group reads the book on their own, then “meets” online to talk about it: impressions, opinions, critiques. Books are selected based on their relevance to epilepsy, such as books that have a fictional or non-fictional character with epilepsy or that is written by a person living with epilepsy. The group will vote on the upcoming books to read.

Synopsis of the book: Eleven-year-old Anna has lived all her life with severe epilepsy. Despite the ravage of thousands of violent seizures and heavy medications, she has thrived at school, athletics, and her greatest passion—dance. As she approaches her twelfth birthday, Anna’s condition takes a dire turn. Her health declines quickly and a new diagnosis is revealed, leaving the family only one excruciating choice. A parent’s memoir about the medical mysteries of epilepsy and the personal suffering of raising a child with a deadly health condition, She Danced with Lightning is told from the perspective of Anna’s dream-chasing father, who comes to learn from her a strength and courage he never imagined possible.

Please email lmyers@epilepsygroup.com if you are interested in participating.