Living with Epilepsy


Support Groups

Many people with epilepsy wish that they could talk to someone other than a specialist in the field. Someone who can relate to their personal struggles from a personal vantage point. Support Groups offer a special place and a unique group of people who share their life experiences with seizures and epilepsy and relate strategies that have...or have not...worked for them. Attending a support group regularly often helps get through the stressors and challenges that living with epilepsy can create and allows you to find out about all sorts of resources and upcoming events.  In the past year, our epilepsy support group closed down because too few were attending. However, we are always open to re-opening if we have enough interest. If you are a patient at the Northeast Regional Epilepsy Group and would like to join a virtual support group, email

Our support groups are back up and running through September 2019 to June 2020!


Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month from September until June: From 12-1PM  
The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information:

Joining a group is easy!

• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.

Lorna Myers