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Newsletter N° 56 | December, 2024 |
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Feature article: Practicing winter sports safely for people with epilepsy.
It is really starting to feel like winter and although different people feel less than thrilled with the snow, ice and the cold temperatures, sometimes it can be fun to get out in the lower temperatures.
Some believe that people with epilepsy (PWEs) should not participate in sports and exercise. This is partly due to fear, overprotection, and perhaps some ignorance regarding the benefits of physical activity. However, there is a growing body of research that shows that exercise does not only promote general health but may in fact affect seizure control for the better.
Having said that, let’s discuss the activities that many enjoy during the winter months and let’s see how PWEs might approach them.
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| Safety in Epilepsy: Special glasses for photosensitive epilepsy |
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People with photosensitive epilepsy may benefit from wearing glasses with dark or filtered lenses, however you shouldn’t just run out and buy one of these glasses without discussing this with your doctor and perhaps being referred to an optometrist too. Also, it is important to do your research carefully because there are a lot of products available, some of which may claim to do things that they actually don’t.
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| Epilepsy on the Move |
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Our epilepsy and seizures community of patients, family, friends and doctors have been on the move over the last few months celebrating November -National Epilepsy Month, sponsoring Epilepsy Services of NJ’s Walk for the One, and our doctors attended the American Epilepsy Society Meeting in Los Angeles, CA. A special shout out to Dr. Robert Trobliger for presenting two scientific posters and manning a third poster that was authored by Dr. Enrique Feoli
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Second Wednesday of the month from September until June 2025: From 12-1 PM
The group is only for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program. They have been diagnosed with PNES and have completed their treatment at the NEREG PNES Program. To register or obtain more information: dramyers@yahoo.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Third Wednesday of the month, from September until June 2025
To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Happy new year and stay tuned for upcoming epilepsy and seizure disorder events and news in the first quarter of 2025! International Epilepsy Day, the National Epilepsy Walk and Purple Day are all coming up! Also, our monthly virtual support groups and our quarterly book clubs are running all through June of 2025.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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