Northeast Regional Epilepsy Group PNES - PsychologicalNon Epileptic Seizures
Quick Links Newsletter N° 55 | September, 2024

1- Feature article: Heading off to college: Tips and advice for college kids living with epilepsy.
2- Safety in Epilepsy: Epilepsy Alliance America helps people with epilepsy cover some of the cost of Seizure ID products!
3- Epilepsy Survey results: For this issue, we asked our readers, where do you prefer to get your information about epilepsy from (other than from your medical team)?
4- Our epilepsy and seizures community of patients, family, friends and doctors took a very necessary break over the summer, but Dr. Marquis sprang into action as soon as the school year started.
5- Epilepsy on the move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the last quarter of 2024
 

Feature article: Heading off to college: Tips and advice for college kids living with epilepsy.

In this issue, we are going to share some useful tips to help students leaving home to begin their college years. There are also wonderful resources at the end of the article.

Some parents, teachers, or even kids themselves may wonder if it is possible to go to college away from home when living with epilepsy. There may be concerns about sleep deprivation, seizures occurring in unfamiliar places, forgetting to take medications, and more.  

The answer is that there are plenty of young people living with epilepsy that can pursue a higher education which may include living in a dorm, on a campus away from the family home. In fact, if there is the desire and potential and it is possible to support the young person in this pursuit, every effort should be made to help them move in this direction (read “A mind unraveled” by Kurt Eichenwald to read a testimonial of college years with epilepsy).  

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Safety in Epilepsy: Epilepsy Alliance America helps people with epilepsy cover some of the cost of Seizure ID products!
Safety in Epilepsy: Epilepsy Alliance America helps people with epilepsy cover some of the cost of Seizure ID products!

Safety in Epilepsy: Epilepsy Alliance America helps people with epilepsy cover some of the cost of Seizure ID products!  When a seizure strikes and the person experiencing it cannot communicate, first responders rely on medical information that can be found on the patient.  Important information includes the diagnosis, medications, and even emergency contacts depending on the product.

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Epilepsy Survey results: For this issue, we asked our readers, where do you prefer to get your information about epilepsy from (other than from your medical team)?
Epilepsy Survey results: For this issue, we asked our readers, where do you prefer to get your information about epilepsy from (other than from your medical team)?

For this issue, we asked our readers, Where do you prefer to get your information about epilepsy from (other than from your medical team)?

A) Books

B) Online websites

C) Conferences

And to our surprise, the responses were almost unanimous for one option.  Scroll down to see the responses.

 

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Our epilepsy and seizures community of patients, family, friends and doctors took a very necessary break over the summer, but Dr. Marquis sprang into action as soon as the school year started.
Our epilepsy and seizures community of patients, family, friends and doctors took a very necessary break over the summer, but Dr. Marquis sprang into action as soon as the school year started.

Our epilepsy and seizures community of patients, family, friends and doctors took a very necessary break over the summer, but Dr. Marquis sprang into action as soon as the school year started. On the first week of September, she captained team Northeast Regional Epilepsy Group in support of the Epilepsy Foundation of Northeast NY (EFNENY). Read all about this wonderful event that allowed the Foundation to raise much-needed funds and to raise epilepsy awareness too!  By the way, you are still in time to make a donation if you are just hearing about this today (wink, wink).

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Support Groups

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VIRTUAL SUPPORT GROUPS

PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP

Fourth Wednesday of the month from September until June: From 12-1 PM
The group is only for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program. They have been diagnosed with PNES and have completed their treatment at the NEREG PNES Program. To register or obtain more information: dramyers@yahoo.com

EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)

Monthly meetings through June 2025

To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.

Joining a group is easy!

Benefits:
• All 60-minute sessions are held through GoToMeeting® 
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. 
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE 
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Epilepsy on the move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the last quarter of 2024
Epilepsy on the move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the last quarter of 2024

Epilepsy on the move: Stay tuned for upcoming epilepsy and seizure disorder events and news in the last quarter of 2024 which include the Epilepsy Services of NJ Walk for the One event in October, National Epilepsy Awareness Month in November, and the American Epilepsy Society meeting being held in Los Angeles in December. Also, our monthly virtual support groups and our quarterly book clubs are running all through 2024.

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 iso epilepsy group www.epilepsygroup.com iso epilepsy life links www.epilepsyandsleep.com Follow Us on Facebook

Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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