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Newsletter N° 52 | December, 2023 |
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Feature Article: The Psychogenic non-epileptic seizure Pocketbook by Drs. Julia Doss and Lorna Myers
Feature article: Drs. Julia Doss and Lorna Myers recently published The Psychogenic non-epileptic seizure Pocketbook. The book's intended audience is mainly clinicians (e.g., therapists, nurses, and other health care professionals) who are working for the first time with a patient diagnosed with PNES. We sat down with one of the authors, Dr. Lorna Myers, to ask her about this newest publication and how it came about.
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| December 2023 Epilepsy Star: For this issue, Mr. Michael J. Hickey is recognized as an Epilepsy Star for his volunteer work and dedication to the epilepsy community! |
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December Epilepsy Star: For this issue, we are very pleased to have Epilepsy Star. Michael J. Hickey, who was nominated by Epilepsy Services of New Jersey’s Andrea Racioppo for his remarkable and dedicated work as an epilepsy advocate, supporter, volunteer, fundraiser, and much more! Over the years, he has been awarded notable recognitions including the Outstanding Volunteer of the Year and the Legacy Volunteer award at The Family Resource Network Impact Awards. We invite you to read all about Mr. Hickey’s life, his epilepsy journey, and his tireless efforts to improve the lives of those living with epilepsy. Congratulations to Mr. Hickey, epilepsy star!
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| Our epilepsy and seizures community of patients, family, friends and doctors has been busy. Read all about our book club, support groups, and epilepsy walks. |
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Our epilepsy and seizures community of patients, family, friends and doctors has been busy. In November, NEREG’s team worked hard to bring awareness to National Epilepsy Awareness Month through activities in the offices, daily social media posts, and e-blasts. Also, over the last few months, NEREG has continued to run our quarterly virtual epilepsy book club and our virtual monthly epilepsy support group. Also, NEREG was a proud sponsor of Epilepsy Services of NJ’s Walk for the One 2023 in Parsippany, NJ.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Fourth Wednesday of the month from September until June: From 12-1 PM
The group is only for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program. They have been diagnosed with PNES and have completed their treatment at the NEREG PNES Program. To register or obtain more information: dramyers@yahoo.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Monthly meetings through June 2024
To inquire about it or to join, email dramyers@yahoo.com. The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Stay tuned for upcoming epilepsy and seizure disorder events and news in the new year! Early in December, the American Epilepsy Society meeting is being held in Orlando, FL where many of the Northeast Regional Epilepsy Group doctors and clinical staff will travel to present their research and to learn from others. Seizure Action Plan week, International Epilepsy Day, our next Epilepsy Book club and Purple Day® will be coming in the first few months of 2024.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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