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Newsletter N° 47 | September, 2022 |
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Feature article: The research pipeline and what this means for the future of those living with epilepsy
Any medication that your doctor prescribes has come down a long path starting in a laboratory with animal subjects and then moving on to clinical trials with humans until it eventually reached your pharmacy and you. Typically, a specific drug is developed to treat a certain disease or symptom but sometimes its utility can also be discovered quite by accident. Anti-seizure medications follow the same pathway as all other drugs.
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| Epilepsy Star: Dr. Pavel Klein |
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The Epilepsy Star featured in our September 2022 issue is Dr. Pavel Klein, Director of the Mid-Atlantic Epilepsy and Sleep Center (MAESC) and Co-director of Research at the Northeast Regional Epilepsy Group and MAESC. Dr. Klein has dedicated most of his professional career to fighting epilepsy and seizures through his clinical work, research initiatives and teaching. For these reasons, he is being granted the Epilepsy Star award for September!
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| Epilepsy Survey results: Have you ever attended an epilepsy support group (in-person or virtually)? Yes, no, never hear of that. |
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Survey: For this issue, we asked our www.epilepsygroup.com visitors to tell us whether they had ever attended an epilepsy support group (in-person or virtually). Support groups can be useful to patients and loved ones because they offer a time and place to meet others who truly understand what it is like to live with a certain health issue or illness. These groups can offer emotional support and foster a sense of not being alone. Of course, support groups may not be right for everyone-some people prefer a one-on-one approach.
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| Our epilepsy and seizures community of patients, family, friends and doctors has been busy! |
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Our epilepsy and seizures community of patients, family, friends and doctors has been busy! The Northeast Regional Epilepsy Group and partner, Mid-Atlantic Epilepsy and Sleep Center launched their Wellness in Epilepsy Program (after a few years of hiatus due to the Covid lockdown). During August of 2022, NEREG offered four introductory chess lessons for people with epilepsy and seizures. Some of the reasons we chose to offer these lessons is because chess is an excellent way to keep your mind active, can be played from home online or can be played with others in-person which helps socialize.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Third Wednesday of the month from September until June: From 1-2 PM
The group is for patients at our NEREG Psychogenic non-epileptic seizures (PNES) program diagnosed with PNES who have completed treatment or who are advanced in their current treatment at NEREG. To register or obtain more information: lmyers@epilepsygroup.com
EPILEPSY ADULT SUPPORT GROUP (for patients and loved ones)
Third Wednesday of the month from September until June: 12-1PM
The group is for persons with epilepsy (or loved ones) who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated with epilepsy, for sharing of resources, and for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
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Stay tuned: There are plenty of upcoming activities that you may want to jot down and keep in mind over the next few months. These include our newly launched book club on books written by or about people with epilepsy and seizures, the 9th Annual Glow walk Run for Epilepsy (hosted by the Epilepsy Services of NJ), Epilepsy Awareness month coming up in November, and the American Epilepsy Society (AES) Annual Meeting that will take place in Nashville, TN this year.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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