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Newsletter N° 40 | December, 2020 |
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Feature Article: Seizures can be scary-how you can increase safety and security in epilepsy
Seizures can be scary, especially for the family of someone with epilepsy (parents, spouses, children) as well as for the person with epilepsy (PWE) who may not be conscious during his/her seizures but hears about them later.
The idea for this article came out of our most recent epilepsy support group meeting when a spouse expressed concern regarding safety and the moderator put together a document with a series of safety items. These were shared with the group members and then it just seemed like a great idea to share this information with our readers as well. And that is how it came to be that our December feature article is on how to stay safe/safer when living with epilepsy.
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| Seizure star: Mia Montgomery, author of "On the Floor Again" |
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Seizure Star: Mia Montgomery, is the author of "On the Floor Again." Her book is a wonderful memoir that describes the road she traveled with her diagnosis of PNES, the ups and downs and how she has learned to manage the disorder in a way that works for her. It has helped many living with PNES to read her book, realize they are not alone, and to learn from her unique experience as both a therapist and a patient.
It is for this reason that she has been chosen as the Northeast Regional Epilepsy Group December newsletter Seizure Star.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Third Wednesday of the month from 1PM to 2PM
The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com
EPILEPSY SUPPORT GROUP
Third Wednesday of the month from 12PM to 1PM
The group is for persons with epilepsy who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated to epilepsy, for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You can have your camera on or off-your choice.
• FREE
CONTACT INFORMATION
If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?
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Stay tuned for epilepsy on the move: Who is not expectantly waiting for 2020 to be over?! Can we all agree this year has been one for the books?! Well, luckily, 2021 is right around the corner and here are a few activities coming up in the much-awaited new year.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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