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Newsletter N° 38 | June, 2020 |
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Feature Article: Living with epilepsy and seizures during the COVID-19 pandemic
The last few months have been tough for most of humanity; this has been the result of the COVID-19 pandemic that has affected the entire world. People with epilepsy (PWE) have unique concerns, some of which will be addressed in this issue's feature article (and useful linked resources have been provided). Additional recommendations will be offered for everyone living through this pandemic.
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| Seizure star: Yazmina Wahby, beauty pageant competitor and epilepsy advocate |
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Every issue, we feature an epilepsy star. An Epilepsy Star is someone who lives with epilepsy and seizures or someone who cares for someone with epilepsy and seizures and who is doing amazing work to raise awareness and improve the wellbeing of the epilepsy community. This issue's spotlight is on Yazmina Wahby, an absolutely lovely beauty pageant competitor from New Jersey. Her platform is epilepsy awareness.
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Support Groups
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VIRTUAL SUPPORT GROUPS
PSYCHOGENIC NON-EPILEPTIC SEIZURES (PNES) SUPPORT GROUP
Our PNES online support group will be resuming in September of 2020.
Third Tuesday of the month from 12-1PM
The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com
EPILEPSY SUPPORT GROUP
One Wednesday per month from 12-1PM
The group is for persons with epilepsy who wish to connect virtually with others also living with epilepsy. The group meets to touch base, to go over challenges that may have arisen for group members associated to epilepsy, for general support and camaraderie. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE
CONTACT INFORMATION
If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?
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Even with the significant impact Covid-19 has had on all of us, the future is still out there and there are many exciting plans in the works. Stay tuned for upcoming epilepsy and seizure disorder events and news in second half of 2020.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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