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Newsletter N° 34 | June, 2019 |
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Feature Article: Epilepsy Services of New Jersey
The Epilepsy Services of New Jersey (previously known as the "Epilepsy Foundation of New Jersey") is a long-standing organization that has been supporting and helping those New Jersey residents who have seizures and their families for many years. Within the last year, a big change took place in that the agency became independent from the Epilepsy Foundation of America and became part of the Epilepsy Alliance of America (EAA). We wanted to hear all about how these changes will benefit the agency and the people they serve and what changes might we be seeing.
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Seizure star: Alyssa D'Amico |
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Alyssa D'Amico has been chosen to be our Epilepsy Star for our June quarterly newsletter. In this interview, she tells us about her journey with epilepsy (medications, surgeries, and more) and what she is doing to live to her full potential while also raising epilepsy awareness through her book "Short Circuit: An Epileptic Journey" and her speaking engagements.
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This issue’s highlight product: Epilepsy beanies |
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This issue's highlight product: Epilepsy beanies to wear and raise awareness all around town. Read the article to learn more about how they were first created and how you could purchase one for yourself.
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Our epilepsy and seizures community of patients, family, friends and doctors has been busy! |
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Our epilepsy and seizures community of patients, family, friends and doctors has been busy! Even though it has been winter, our doctors, office managers, secretaries and nurses have definitely not slowed down one bit. Instead, they have been extra-busy raising epilepsy and seizure awareness through: 1) Receiving awards and recognition from medical peers 2) publishing scientific articles in peer-reviewed journals, 3) Presenting scientific research findings at an international conference in New York City.
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Support Groups
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Our support groups are back up and running through September 2018 to June 2019!
VIRTUAL SUPPORT GROUPS
Psychogenic non-epileptic seizures (PNES) support group Third Tuesday of the month until June: From 12-1PM The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits: • All 60-minute sessions are held through GoToMeeting® • Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.) • All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures. • Confidential. • Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs. • FREE
CONTACT INFORMATION
If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?
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We strive to keep moving all year long in the march against epilepsy and seizures and the upcoming months are no different with educational events, local epilepsy walks and the Annual American Epilepsy Society Meeting held in Baltimore, MD.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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