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Newsletter N° 31 | September, 2018 |
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The many ways of and dates for raising epilepsy awareness - Feature article
Over the last years, there has been a growing number of epilepsy awareness events, days, and months-so many in fact that it can become hard to remember all of them. Because we want to celebrate and raise awareness for epilepsy as much as possible and want many of you to join in too, for this quarterly newsletter issue, we compiled a list of several of the more important ones. You may want to pull out your calendar and take note now!
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| Seizure star: Christina Dykenga |
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Christina, you have been chosen as the September 2018 Epilepsy Star and are being featured in this issue of our quarterly newsletter. Tell us a little about yourself
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| Epilepsy Medical Alert Bracelets made out of Paracord |
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Medical alert bracelets don't always have to look the same and people are surely expressing themselves beautifully lately using different materials, shapes, and colors. For this issue, we are featuring an epilepsy bracelet that caught our eye while perusing through an arts and crafts website.
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Support Groups
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Our support groups are back up and running through September 2018 to June 2019!
VIRTUAL SUPPORT GROUPS
Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM
The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community. To register or obtain more information: lmyers@epilepsygroup.com
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE
CONTACT INFORMATION
If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?
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On September 14-15, Dr. Lorna Myers will participate in a meeting on functional neurological disorders in Atlanta, Georgia where she will present on "expectancy and the internet in PNES".
On October 5, Dr. Lorna Myers will present on psychogenic non-epileptic seizures at the Neurological Institute of Columbia Presbyterian.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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