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Newsletter N° 27 | September, 2017 |
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| Seizure Star: Katherine Berger |
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For NEREG's September 2017 newsletter, Katherine Berger, someone living with psychogenic non-epileptic seizures (PNES), a seizure condition often associated with PTSD and triggered by psychological stress, and a very accomplished author, sat down with us to tell us about her advocacy activities. Even today, PNES is often misunderstood and ignored by many health professionals and the general public, but with a growing and empowered community, this is starting to change. Kate has been a big part of this change by authoring a wonderful book called "View from the Floor".
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| Our epilepsy community of patients, family, friends and doctors has been busy |
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Patients, family members, friends, doctors, office managers, secretaries and nurses have all been extra-busy these last few months raising epilepsy awareness through 1) a Jersey Shore bike ride, 2) Walk into the Light Epilepsy event in New York City, 3) community booths in two New Jersey locations, and 4) a very timely webinar on managing seizures in the school given by nurse practitioner, Shannon Brophy. Last but certainly not least, NEREG doctors have published a number of scientific articles in the last few months. These publications have come out in peer-reviewed journals. Below you can read all about the activities NEREG and their patients have been a part of during this year!
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Support Groups
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Our support groups are back up and running through September 2016 to June 2017!
VIRTUAL SUPPORT GROUPS
Psychogenic non-epileptic seizures (PNES) support group
Third Thursday of the month until June: From 12-1PM
The group is for patients at our NEREG PNES program diagnosed with PNES who have completed treatment or who are advanced in their current treatment. Unfortunately, the group is not open to anyone who has not gone through our treatment program because the demand would be too great for our conference call. The group meets to touch base, to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by a facilitator who is knowledgeable about psychogenic non-epileptic seizures.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE
CONTACT INFORMATION
If you are a NEREG patient, have epilepsy and would be interested in a similar group, please contact Lmyers@epilepsygroup.com. In the past, we tried to establish an on-line group like this for our patients with epilepsy but there was limited attendance-but who is to say that we can't try again and with better results?
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Stay tuned because there are a lot of epilepsy and seizure disorder events and activities coming up in the second half of 2017 including the Northeast Regional Epilepsy Group annual conference that is being held in Morristown, NJ this year in October and a flurry of activities our doctors and nurses are involved in during the December American Epilepsy Society Meeting held in Washington, DC. This meeting is the most important professional meeting on epilepsy in all of the US and quite possibly, the world.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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