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Newsletter N° 23 | September, 2016 |
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RNS® System by NeuroPace - a New Treatment Designed to Prevent Seizures at their Source: Feature Article
The Northeast Regional Epilepsy Group offers a breakthrough treatment option for adults suffering from disabling seizures that are not controlled by medication.
For this issue, we are featuring the first and only FDA approved brain-responsive neurostimulation system designed to prevent seizures at their source, the RNS® System by NeuroPace. Most epilepsy treatments deliver therapy continuously, whether or not patients are having a seizure. The RNS System is different. It is a smart device that responds to what's happening in the brain to stop seizures at their source.
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| News about Epilepsy Free not-for-profit |
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This calls for a celebration! Epilepsy Free, our not-for-profit, granted:
Seven $400 summer camp scholarships to children living with epilepsy.
Five $1000 and four $500 continuing education scholarships to adults living with epilepsy and psychogenic non-epileptic seizures (PNES).
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| Epilepsy Survey results |
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Every issue, we feature a survey that has been posted on our epilepsygroup.com homepage and where our visitors have had the chance to show how much they know about epilepsy and seizures.
Over the last few months we asked our visitors if STATUS EPILEPTICUS (prolonged seizure or repeated seizures without a full recovery in between) is officially defined as lasting 1) beyond 30 minutes, 2) beyond five minutes, 3) beyond one hour.
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| Our epilepsy community of patients, family, friends and doctors has been busy |
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Dr. Eric Segal presented at the Dravet Syndrome Foundation Family and Professional Conference in Florida, Dr. Lorna Myers presented a webinar on psychogenic non-epileptic seizures (PNES) in Spanish offered in a webinar format. NEREG patients were invited to participate in our 4 session poetry workshop that was conducted via computer to avoid transportation issues, and there was an educational chat offered on the new epilepsy treatment device-Neuropace®. Our doctors have been very active publishing articles in scientific journals that are read by fellow colleagues.
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Support Groups
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Our support groups are back up and running through September 2016 to June 2017!
VIRTUAL SUPPORT GROUPS
Psychogenic non-epileptic seizures (PNES) support group
Third Tuesday of the month until June: From 12-1PM
The group is for patients diagnosed with PNES who have completed treatment or who are advanced in their current treatment. The group meets to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE
CONTACT INFORMATION
Lorna Myers
lmyers@epilepsygroup.com
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Stay tuned because there are a ton of epilepsy and seizure disorder events and activities coming up this year including walks, runs, rides, conferences, and the upcoming International Epilepsy Day.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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