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Newsletter N° 22 | June, 2016 |
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Does it seem like your memory and thinking have changed since you started having seizures?
Our feature article in this quarterly issue focuses on some of the difficulties that patients with epilepsy and other seizure disorders may find they are having along with explanations about the tests that can be used confirm these difficulties and to check for changes over time.
We sat down with neuropsychologist, Dr. Keren Isaacs Lebeau, to learn more about neuropsychological testing. Keren Isaacs Lebeau, Ph.D. is the Co-Director of Clinical Neuropsychology with the Northeast Regional Epilepsy Group. She earned her Ph.D. in Clinical Psychology from The George Washington University and completed her post-doctoral fellowship training in neuropsychology at the NYU Comprehensive Epilepsy Center. Dr. Lebeau has extensive experience in the neuropsychological evaluation of children and adults with epilepsy and other neurological disorders.
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| Bike-a-thon for Epilepsy Free not-for-profit |
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On May 1, Team Epilepsy Free rode 40 miles through New York City in the 5-boro Bike Tour raising badly needed funds for the Epilepsy Free not-for-profit that grants scholarships to children and adults with epilepsy and psychogenic non-epileptic seizures.
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| Epilepsy Star Family |
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The Devisser family has been chosen as this issue's Epilepsy Star Family. Read on and you will understand why they were nominated and find out about all their ongoing and future projects to raise epilepsy awareness and funds for the Timothy Devisser Scholarship.
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| Our community of patients, family members, and doctors have been busy |
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What a few months it has been! Our epilepsy and seizure disorders community has been all over the map, marching for epilepsy on April 16 in Washington, DC, riding the 5 boro bike tour in New York City on May 1 for Epilepsy Free, and walking through Hudson Valley for epilepsy just one week later. We also offered our first ever introduction to chess seminars that were held on-line.
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Support Groups
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Our support groups are back up and running through September 2015 to June 2016!
VIRTUAL SUPPORT GROUPS
Psychogenic non-epileptic seizures (PNES) support group
First Thursday of the month until June: From 1:00pm-2:00pm
The group is for patients diagnosed with PNES who have completed treatment or who are advanced in their current treatment. The group meets to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE
CONTACT INFORMATION
Lorna Myers
lmyers@epilepsygroup.com
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There are so many epilepsy and seizure disorders activities coming up during the second part of the year that it is hard to keep track. Some are workshops and webinars and others are conferences (including our annual Northeast Regional Epilepsy Group conference on pediatric and adult epilepsy and psychogenic non-epileptic seizures), and an epilepsy and seizure disorders walk in New Jersey. Pull out your calendar to mark down the ones you would like to be a part of-you are very welcome to join us.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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