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Newsletter N° 18 | June, 2015 |
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Sturge Weber Syndrome - Feature Article
Director of the New Jersey Pediatric Epilepsy Program of the Northeast Regional Epilepsy Group in Hackensack University Medical Center, Eric Segal, M.D sat down to talk about the Sturge Weber syndrome: what it is, how it is diagnosed and treated. He was interviewed by Sloka Iyengar, Ph.D., an epilepsy researcher at the NEREG who has a strong interest in epilepsy education and advocacy.
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| Epilepsy Wellness Program at the Northeast Regional Epilepsy Group! |
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This summer and fall the Northeast Regional Epilepsy Group is excited to launch a variety of wellness activities geared to bringing our epilepsy community members together in a series of healthy and fun activities. We have gathered professionals in several arenas of wellness to come and instruct various ways to get moving, be creative and grow personally. This year’s program will take place in several of our different offices in Manhattan, White Plains, and Hackensack and will include Draw What You See, Chess 101, and potentially a workshop on seated yoga.
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| Epilepsy Survey: Do you know what a pediatric epileptologist is? |
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This quarter we asked our website visitors to show their knowledge about a subspecialty in epilepsy; we asked them to tell us if they know what a pediatric epileptologist is. Children with certain epilepsy syndromes and who may not be responding to treatment might benefit from seeing a specialist of this kind.
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| Travel Scholarships for persons with epilepsy who walked in DC for epilepsy in 2015 |
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This year, the Northeast Regional Epilepsy Group donated several thousands of dollars to the Epilepsy Foundation of NJ, Epilepsy Foundation of Connecticut and the Epilepsy Foundation of Northeastern NY. This donation became the Northeast Regional Epilepsy Group Travel Fund that is granted to persons with epilepsy to help with the high costs of traveling to Washington DC (transportation, hotel, food).
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| Living Safely with Epilepsy: Safety Products |
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Handmade By Heroes, has over 40 veterans in its program and works closely with the Department of Veterans Affairs, Pikes Peak Workforce and Rocky Mountain Human Services. Veterans make awareness bracelets and in exchange make money and have the benefit of belonging to an organization. Handmade by Heroes makes a bracelet for persons with epilepsy. Read more about this wonderful organization and how to get one of these bracelets.
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| Our epilepsy community has been busy with Walks the first half of 2015 |
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Our patients, doctors and staff have been working steadily to raise epilepsy awareness and support our local foundations through fundraising. Team NEREG has traveled all over for epilepsy and seizures. And wonderful team members have joined us from across the country including Maine, Maryland,
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Support Groups
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Our support groups are back up and running through September 2014 to June 2015!
ADULTS WITH EPILEPSY & THEIR CAREGIVERS
1st Thursday of every month - 6:30 pm
White Plains Hospital Centennial Room
Davis Avenue & East Post Road
White Plains, NY 10601
VIRTUAL SUPPORT GROUPS
Psychogenic non-epileptic seizures (PNES) support group
First Thursday of the month until June: From 1:00pm-2:00pm
The group is for patients diagnosed with PNES who have completed treatment or who are advanced in their current treatment. The group meets to go over current problems that may have arisen for group members associated to PNES, for general support and comradery, and to continue to be part of the PNES community.
Third Wednesday of the month From January to June: From 6:00pm-7:00pm
The NEREG Virtual Support groups provide a forum that facilitates and promotes the sharing of common interests, information, and experiences within the epilepsy community. These online groups allow you to participate in support activities when you are unable to attend a local support meeting in person; and are managed by qualified facilitators knowledgeable on Epilepsy-related topics. During these sessions, you have the opportunity to speak with other participants, seek advice, make friends, discover new ideas, share your experiences – good and bad, and help support others managing Epilepsy.
Joining a group is easy!
Benefits:
• All 60-minute sessions are held through GoToMeeting®
• Each group is kept small in order to encourage friendship and optimal discussion time (8-10 participants.)
• All groups are led by an experienced facilitator who is knowledgeable about Epilepsy.
• Confidential.
• Participation in this facilitated discussion is expected and encouraged. You are not on camera, so come in your PJs.
• FREE
CONTACT INFORMATION
Urmi Vaidya
201-343-6676
uvmlcsw@gmail.com
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Epilepsy education and awareness events don’t take a break in the summer or fall. There are a number of activities being offered by NEREG for all kinds of personal tastes and necessities. We will be offering our 1) annual Northeast Regional Epilepsy Group conference on epilepsy and psychogenic non-epileptic seizures in October, 2) webinars galore given by our epileptologists and psychologists 3) our team will be Strolling for Epilepsy in Dutchess County, NY in June to raise funds for the Epilepsy Foundation of Northeastern NY.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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