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Newsletter N° 9 | March, 2013 |
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Infantile Spasms feature article-child epileptologist, Dr. Adenike Opaleke
In this issue we sat down with Dr. Adenike Opaleke, child neurologist and epileptologist of the Northeast Regional Epilepsy Group who sees patients in our epilepsy hospital unit and outpatient offices in Summit, NJ. Dr. Opaleke is originally from Nigeria. She completed her Pediatrics Residency at Lincoln Hospital and Medical Center in New York City, her Neurology Fellowship at the State University of New York and her Neurophysiology Fellowship at Emory University in Georgia. She is Board Certified in Pediatrics, Child Neurology and Neurophysiology. Her research interests are in pediatric neurology and the effect of hormones on epilepsy.
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| How to stay safe with epilepsy in the summer - Dr. Olga Laban-Grant |
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Seizure safety during the warmer months
The nice weather of spring and summer is almost here! Gardening, spring cleaning, and outdoor sports will be on everybody’s mind soon enough which is great but let’s not forget to maintain seizure safety. Epilepsy can pose some unique challenges since seizure patterns may be affected by the heat and dehydration, or due to changes in daily routines. Keep in mind that even if your seizures are well controlled on medications, some of the medications may decrease ability to sweat and therefore may increase chance of overheating, while other medications can make you extra sensitive to sun exposure.
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| Shining Epilepsy Star - Cynthia Fabian, author |
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Cynthia Fabian is a published author who had epilepsy since childhood. She has used her love of writing and her teaching degree to write a book to educate children about epilepsy which has been used by parents, teachers and school nurses alike. For this reason, she is this issue's Epilepsy Star and we salute her.
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| Epilepsy Survey - Should you put something in the mouth of someone who is having a seizure? |
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One of the most dangerous myths about epilepsy is that if someone is having an epileptic seizure some sort of object needs to be introduced into the mouth. Nothing could be farther from the truth. Despite major efforts to educate the public about this, the myth persists. We were happy to see that most of those who answered our epilepsy survey knew the right answer. Please keep spreading this important nugget of knowledge and help improve the life of those who have epilepsy.
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| Epilepsy Wellness Program in New York and New Jersey |
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Spring into our Spring Epilepsy Wellness Program with the Northeast Regional Epilepsy Group!
This spring the Northeast Regional Epilepsy Group is excited to launch a variety of wellness activities geared to bringing our epilepsy community members together in a series of healthy and fun activities. We have gathered professionals in several arenas of wellness to come and instruct various ways to get moving, be creative and grow personally. This year’s program will take place in many of our different offices in Manhattan, White Plains, and Staten Island as well as Hackensack and New Brunswick and will include workshops in yoga, painting classes, a drum circle group (learn to play a bongo drum), music appreciation and of course we will continue our very successful purple knitting/crochet club and Team Northeast Regional Epilepsy Group Walks in Washington, DC and in NJ, NY, and CT.
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| Epilepsy Activities 2012-2013: Epilepsy webinars, Purple Valentine’s Project for epilepsy, Northeast Regional Epilepsy Group Sandy Relief Project |
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Patients and doctors at the Northeast Regional Epilepsy Group have been busy this winter despite snowy and cold conditions and having gone through the after effects of Superstorm Sandy. Everyone came together to collect food, supplies, and warm coats for survivors of Superstorm Sandy in New York and New Jersey. They were delivered to the People’s Pantry in Tom’s River and to food pantries in New York. The Northeast Regional Epilepsy Group decided to try something new this year in their campaign to educate as many people as possible about epilepsy, seizures, anti-epileptic treatments, and more. Dr. Chris Lambrakis bravely launched our 2013 webinar series followed by Dr. Evan Fertig. Reviews have been really positive! Last but not least, we participated in the bE my Valentine’s project organized by the very creative Ron Lamontagne of Connecticut and had a lot of fun.
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| Our epilepsy specialists in New York and New Jersey are actively working |
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Our doctors are keeping busy teaching courses on epilepsy and neuropsychology to other professionals at Jersey City Medical Center, the Children’s Specialized Hospital in New Brunswick, the Annual Conference at the New York State Psychological Association, and working on special topics in epilepsy.
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Support Groups
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Our support groups will be running through June 2013!
ADULTS WITH EPILEPSY & THEIR CAREGIVERS
2nd Tuesday of every month – 6:30 pm
Wallkill Medical Arts Building
390 Crystal Run Road – Suite 102
Middletown, NY
3rd Monday of every month - 6:00 pm
737 Castleton Ave
Staten Island, NY 10310
(two blocks from Richmond University Medical Center)
1st Thursday of every month - 6:30 pm
White Plains Hospital Medical Library
Davis Avenue & East Post Road
White Plains, NY 10601
3rd Wednesday of every month - 6:30 pm
Hackensack University Medical Center
20 Prospect Avenue - Suite 800
Main Conference Room
Hackensack, NJ 07601
1st Tuesday of every month - 6:00 pm
Jersey City Medical Center
355 Grand Street
Conference Room #5
Jersey City, NJ 07302
GRUPOS DE APOYO EN ESPAÑOL
2do jueves de cada mes - 6:30 pm
Salon de Conferencia
20 Prospect Ave.
Suite 800
Hackensack, NJ 07601
CONTACT INFORMATION
Lorna Myers, Ph.D.
212-661-7460, option 5
lmyers@epilepsygroup.com
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The Northeast Regional Epilepsy Group has ten upcoming webinars for everyone to learn all about epilepsy from the comfort of their own computer, Team Northeast Epilepsy Group will go on five epilepsy walks (everyone is invited to join the team), and nine epilepsy conferences throughout New York, New Jersey and Connecticut this year.
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Launched in 1998, Northeast Regional Epilepsy Group (NEREG) is a multi-site practice in New Jersey, New York and Connecticut that offers unique services and comprehensive care to children and adults with epilepsy. NEREG provides state-of-the-art diagnostic procedures, 24/7 patient service, highly skilled and experienced practitioners, and exceptional specialty programs designed to cover a broad range of health care needs in each epilepsy patient. NEREG consists of twenty board-certified epilepsy specialists with fellowship training in adult and childhood epilepsy, as well as many other highly skilled health care providers including pediatric/adult neurosurgeons, neuropsychologists, clinical psychologists, epilepsy nurse practitioners, a specially trained nutritionist and epilepsy advocates.
Launched in 2003, Mid-Atlantic Epilepsy and Sleep Center (MAESC) is a practice located in Bethesda, Maryland that offers neurological services and comprehensive care to children and adults. MAESC consists of six board-certified neurologists who treat epilepsy, multiple sclerosis and other neurological illnesses.
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20 Prospect Avenue, Suite 800
Hackensack, New Jersey 07601
Tel (201) 343-6676 / Fax (201) 343-6689
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333 Westchester Avenue, Suite E104
White Plains, NY 10604
(914)4289213
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